Friday, October 17, 2008

1 out of 2...

If you start into this and have no idea what I am talking about, go to this post. We received our girls ultrasound results today. Hope is completely clear. This is a huge relief as we understood her orphanage to be one of "the Ones" to have quite a few cases. Love's ultrasound shows "multiple BB size stones" in her left kidney. There was technical terminology from the pediatrician but this was her layman's version.

So, where do we go from here? Well, early next week she will get back to us with a pediatric urologist and then pediatric nephrologist. We are her first case and she wants to call around as see if anyone in the area is even dealing with these melamine stones yet. If not we may have to go to an even bigger city and get her treated...which at this point...no one even can agree on what to do or if you do anything at all.

Why? Because humans aren't supposed to digest melamine...remember, it is for fertilizer and plastics...not human consumption. So there is not research on how to treat these melamine stones. But, here we are, on the other side of this circumstance and we are thankful. We are so fortunate to have been allowed to get the ultrasound...and now to seek further treatment. We are catching this early, I guess, so we will be thankful for that too. We could be completely oblivious to this and then all the sudden have troubles...now it is on our radar.

There are varying opinions about how to treat them...some specialists say watch and monitor, others are trying to 'blast' them but are saying now that is not a good idea because you are not dealing with the typical calcification type kidney stone but a deposit of the actual poison that camps out in the kidney. Others having them "picked" out. I am confident that we will be placed in exactly the right doctor's hands. I happen to know the Great Physician himself ;) He could dissolve these little BBs by our next visit if He wanted to...and if He doesn't well...we will just keep praying for our little Love. I am thankful that she isn't in pain...other than a recurring ear infection...on another antibiotic as of yesterday...

What could happen with these stones? Well, out there in cyberworld...there are many presumptions....perhaps nothing, but more commonly infection, pain, kidney failure, death, possible cancer...who even knows...well, I know the One who does and so far...He hasn't told me. I can tell you that we aren't all running around screaming the sky is falling...I trust that the Lord is still holding our Love right in the palm of his hand. There is just no better place to be and there is no one who loves her more :)

Our pediatrician actually said 1 out of 2 is what we have. And well, it is. As more information is shared among specialist the better things will get. I don't particularly care for our child being in the "guinea pig" baseline group of babies. It is like we are venturing into territories unknown...because like I said before...you just aren't supposed to feed babies formula with chemicals made for fertilizer or plastics.

Are we missing out on a blessing because Love's ultrasound shows the stones...absolutely not! We are beyond blessed!! We have been given the diagnosis and the doctor to step up and get us where we need to be. So that Love may get the treatment that she needs...Am I upset that Love has to even deal with these stones...yes! But I am going to cling to this: "For I know the plans I have for Love," declares the Lord, "plans to prosper Love and not to harm Love, plans to give Love hope and a future." - Jeremiah 29:11 Just beautiful! Does it get anybody else all goosebumpy when you put your baby's name into Scripture??? Don't even get me started on knowing the number of hairs on her head.... :0) Oh, I Love Him....Love. Him.

2 comments:

Juliet said...

I am claiming Jeremiah 29:11 with you!!!

Heather said...

I sat down to catch up on blogs tonight and I was shocked when I read yours. I will keep your little Love in my prayers. Our girls will have their ultrasounds this Wednesday and I am so nervous for them. Like you this is a first for our Ped.

Heather